Thursday, July 30, 2009

Explanation of Why We are Low On Certain Vitamins

FMS sufferers have one symptom that makes us prone to low levels of some vitamins. Frequent Urination. Water Soluable Vitamins wash out of our systems in our urine. If we "go" more often, we also lose more vitamins.

Click on the heading to see a list of Water Soluable Vitamins. That page is only a partial list of water soluable vitamins though. Potassium and several others are also something Fibro sufferers need daily and are usually low on.

Guafenasin Protocol

Click on the Heading to go to the site where this is posted. I can't copy anything in here that is on their page, but can link you to their site.

Fibromyalgia Warning Sign



I found this from someone on the Facebook Fibro360 website and thought it was adorable. Thought you all might enjoy it.

Tuesday, July 28, 2009

More Fibro Symptoms and Info Sites

From www.Fibrohugs.org

Monday, 01 March 2004
Posted by Perdita (B.C.) on www.fibrohugs.org
I compiled this list from my doctor's office Fibro Awareness pamphlet (Dr. L. Lacroix), the British Columbia Fibromyalgia Society, and from correlating fibro symptoms discovered here on the Fibrohugs forums and chats. You don't need ALL of these symptoms to have FMS, but chances are you have a great portion of them. Accompanying symptoms are used to positively diagnose one with FMS if the patient shows signs of FMS but doesn't have the 11 sensitive tender points that are used for diagnosis. Deep muscle acupuncture along the tender points and tender point meridians can also be used to positively diagnose FMS, even though most countries and insurance agencies will not take an acupuncturists diagnosis unless it is backed by a medical doctor. Found at http://www.fibrohugs.org/index.php?option=com_content&task=view&id=10301&Itemid=34

Please DON'T SELF DIAGNOSE! Use this list to help journal your symptoms and any progression you feel you are experiencing and CONSULT WITH YOUR DOCTOR. If your doctor isn't willing to even consider looking into your problems, then "shop around." But be sure to have appropriate medical consultation on your health.

PHYSIOLOGICAL PROBLEMS:
__ recurrent flu-like illness
__ recurrent sore throats, red and injected
__ painful lymph nodes under the arms and neck
__ muscle and joint aches with tender and trigger points - up to 18 of them
__ night sweats and fever
__ severe nasal and other allergies
__ irritable bowel syndrome (IBS)
__ weight change - usually gain
__ heart palpitations
__ mitral valve prolapse
__ severe PMS
__ yeast infections
__ rashes and itching
__ uncomfortable or frequent urination
__ interstitial bladder cystitis
__ chest pains (non-cardiac)
__ temporomandibular joint dysfunction (in the jaw)
__ hair loss
__ carpal tunnel syndrome
__ cold hands and feet
__ dry eyes and mouth
__ severe and debilitating fatigue
__ widespread pain
__ other chronic illness(es) usually present (like diabetes, hypoglycemia, asthma, lupus, ms, etc.)
__ numbness in the limbs, not painful like pins & needles
__ painful swelling in the hands, legs, feet, neck
__ GERDs (gastro-esophageal reflux disorder)
__ “growing pains” start in childhood and teens, continue into adulthood
__ widespread body pain during/after physical exertion

Found at http://www.fibrohugs.org/index.php?option=com_content&task=view&id=10301&Itemid=34

COGNITIVE FUNCTION PROBLEMS:
__ attention deficit disorder
__ spatial disorientation
__ calculation difficulties
__ memory disturbance
__ communication difficulties (problems speaking, confusing words)

PSYCHOLOGICAL PROBLEMS:
__ depression
__ anxiety and panic attacks
__ personality changes, usually for the worse
__ emotional lability (mood swings)

OTHER NERVOUS SYSTEM PROBLEMS:
__ sleep disturbances
__ headaches
__ changes in visual acuity
__ numb or tingling feelings
__ burning sensations
__ light headedness
__ feeling 'spaced out'
__ desequilibrium
__ frequent unusual nightmares and disturbing dreams
__ tinnitus (ringing in the ears)
__ difficulty in moving your tongue to speak
__ severe muscle weakness
__ susceptibility to muscle, tendon, ligament injury
__ intolerance to bright lights
__ intolerance to alcohol
__ intolerance to sound
__ extreme sensitivity to medications and their side-effects
__ alteration of taste, smell, and hearing
__ insomnia
__ inability to achieve stage 4 restorative sleep
__ morning stiffness in the muscles and joints
__ restless leg syndrome
__ muscle spasms
__ muscle quakiness and shivering during/after activity or exercise
__ sleep paralysis (related to stage 4 sleep deprivation)


Last Updated ( Sunday, 31 May 2009 )

Fibromyalgia Symptoms and Info Sites

This link will take you to the National Institute of Arthritis and Musculoskeletal and Skin Diseases.

The 1st list of symptoms on the article below this one are from this website.

Fibromyalgia syndrome is a common and chronic disorder characterized by widespread pain, diffuse tenderness, and a number of other symptoms. The word “fibromyalgia” comes from the Latin term for fibrous tissue (fibro) and the Greek ones for muscle (myo) and pain (algia).

Although fibromyalgia is often considered an arthritis-related condition, it is not truly a form of arthritis (a disease of the joints) because it does not cause inflammation or damage to the joints, muscles, or other tissues. Like arthritis, however, fibromyalgia can cause significant pain and fatigue, and it can interfere with a person’s ability to carry on daily activities. Also like arthritis, fibromyalgia is considered a rheumatic condition, a medical condition that impairs the joints and/or soft tissues and causes chronic pain.

In addition to pain and fatigue, people who have fibromyalgia may experience a variety of other symptoms including:

cognitive and memory problems (sometimes referred to as “fibro fog”)
sleep disturbances
morning stiffness
headaches
irritable bowel syndrome
painful menstrual periods
numbness or tingling of the extremities
restless legs syndrome
temperature sensitivity
sensitivity to loud noises or bright lights.
Fibromyalgia is a syndrome rather than a disease. A syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause. A disease, on the other hand, has a specific cause or causes and recognizable signs and symptoms.

Most people don't know that Fibro patients are light and sound sensitive, but it's common. It wasn't listed with the other common symptoms when I was first diagnosed back in 1989 after I was in two car wrecks within 7 months of each other in 1988. After the second time (when I was hit by a pickup truck driver whose brakes failed) the pain just never went away. I was diagnosed the year after the two car wrecks. They are getting much more familiar with what is and isn't part of Fibromyalgia now and even I am finding more things in common with other Fibro patients I get to know that none of us associated with Fibromyalgia previously. Doctors don't listen enough and we don't get to talk with others enough for any of us to get familiar with just what all we have in common. Thankfully there are some good online sites to read and post to that are helping with that, such as Fibro360 on facebook at this link:

http://www.facebook.com/inbox/readmessage.php?t=1096924668272&mbox_pos=0#/Fibro360?ref=ts

Thursday, July 23, 2009

Fibro Symptoms and Vitamins

Click on any article heading (title) and if there is a link to a website, it will take you there. This article heading will take you to the National Fibromyalgia Associate website which is very helpful.

Here are some common symptoms of Fibromyalgia:

Symptoms

Chronic muscle pain, muscle spasms or tightness, and leg cramps

Moderate or severe fatigue and decreased energy Insomnia or waking up feeling just as tired as when you went to sleep

Stiffness upon waking or after staying in one position for too long

Difficulty remembering, concentrating, and performing simple mental tasks

Abdominal pain, bloating, nausea, and constipation alternating with diarrhea (irritable bowel syndrome)

Tension or migraine headaches

Jaw and facial tenderness

Sensitivity to one or more of the following: odors, noise, bright lights, medications, certain foods, and cold

Feeling anxious or depressed

Numbness or tingling in the face, arms, hands, legs, or feet

Increase in urinary urgency or frequency (irritable bladder)

Reduced tolerance for exercise and muscle pain after exercise A feeling of swelling (without actual swelling) in the hands and feet

Painful menstrual periods

Dizziness

Fibromyalgia symptoms may intensify depending on the time of day -- morning, late afternoon, and evening tend to be the worst times, while 11 a.m. to 3 p.m. tends to be the best time. They may also get worse with fatigue, tension, inactivity, changes in the weather, cold or drafty conditions, overexertion, hormonal fluctuations (such as just before your period or during menopause), stress, depression, or other emotional factors. If the condition is not diagnosed and treated early, symptoms can go on indefinitely, or they may disappear for months and then recur.
Call Your Doctor About Fibromyalgia If: You have chronic muscle pain and overwhelming fatigue.


This is from another Fibromyalgia website:

Chronic widespread body pain is the primary symptom of fibromyalgia. Most people with fibromyalgia also experience moderate to extreme fatigue, sleep disturbances, sensitivity to touch, light, and sound, and cognitive difficulties. Many individuals also experience a number of other symptoms and overlapping conditions, such as irritable bowel syndrome, lupus and arthritis.

Pain
The pain of fibromyalgia is profound, chronic and widespread. It can migrate to all parts of the body and vary in intensity. FM pain has been described as stabbing and shooting pain and deep muscular aching, throbbing, and twitching. Neurological complaints such as numbness, tingling, and burning are often present and add to the discomfort of the patient. The severity of the pain and stiffness is often worse in the morning. Aggravating factors that affect pain include cold/humid weather, non-restorative sleep, physical and mental fatigue, excessive physical activity, physical inactivity, anxiety and stress.


Fatigue
In today's world many people complain of fatigue; however, the fatigue of FM is much more than being tired after a particularly busy day or after a sleepless night. The fatigue of FM is an all-encompassing exhaustion that can interfere with occupational, personal, social or educational activities. Symptoms include profound exhaustion and poor stamina


Sleep problems
Many fibromyalgia patients have an associated sleep disorder that prevents them from getting deep, restful, restorative sleep. Medical researchers have documented specific and distinctive abnormalities in the Stage 4 deep sleep of FM patients. During sleep, individuals with FM are constantly interrupted by bursts of awake-like brain activity, limiting the amount of time they spend in deep sleep.


Other symptoms/overlapping conditions
Additional symptoms may include: irritable bowel and bladder, headaches and migraines, restless legs syndrome (periodic limb movement disorder), impaired memory and concentration, skin sensitivities and rashes, dry eyes and mouth, anxiety, depression, ringing in the ears, dizziness, vision problems, Raynaud's Syndrome, neurological symptoms, and impaired coordination.


I have been having decreased pain and much better sleep when I began taking daily supplements of Potassium, Magnesium, Manganese, Olive Leaf, and a Watkins products supplement called "Hair, Skin, and Nails" which has many different really good ingredients it it. You can find all the info on this Watkins product at:

http://www.watkinsonline.com/pdf/products/02270.pdf

All the other supplements can be found in any vitamin section at your grocery store and they are none of them expensive.

If you want to order the Watkins supplement, my associate ID is #368789 and you can order at www.watkinsonline.com (with my name, Deborah Croke and my ID # 368789). I'm not on this blog to sell, but if you want that particular supplement product that is where you have to get it. It costs $15.99 plus S&H.

The other products cost between $3.00 and $10 over the counter at health food stores or vitamin setions at the grocery store.

Here is the info on these vitamins and minerals and how they help with Fibro.

One of the ingredients in the Watkins Hair Skin and Nails is:
• Red Grape Anthocyanosides: Responsible for
the red color of grapes and berries, these are special
flavonoids that increase the strength of the
capillaries that deliver nutrients and oxygen to
the skin, follicles and nail beds.*

I recently read an article online about how Fibro patients have a problem with their cells not absorbing oxygen from their blood stream. This product helps oxygenate your blood cells.

Magnesium helps with:

Cluster headaches.
Migraine headaches.
Asthma attacks, when given intravenously.
Premenstrual syndrome (PMS).
Weakened bones (osteoporosis).
Preventing type 2 diabetes in overweight, middle-aged women, when magnesium is obtained from foods. More evidence is needed to know if magnesium helps treat diabetes.
Pregnancy-related leg cramps.
Irregular heartbeat (arrhythmia).
Diseases of heart valves (mitral valve prolapse).
High cholesterol.
Chest pain due to artery disease.
Kidney stones.
Hearing loss in people exposed to loud noise.
Fibromyalgia pain, when used with malic acid.
Metabolic syndrome (a condition that increases risk for diabetes and heart disease).
Nerve pain caused by cancer.
Chronic fatigue syndrome (CFS)and Fibromyalgia.
Pain after a hysterectomy.
Decreasing the risk of stroke.
A lung disease called Chronic obstructive pulmonary disease (COPD).

Possibly Ineffective for:Helping to restart the heart.
Improving energy and endurance during athletic activity.
Cerebral palsy, when given in the vein of premature infants.
Heart attack.

Magnesium is safe for most people when taken by mouth or when the prescription-only, injectable product is used correctly. In some people, magnesium might cause stomach upset, nausea, vomiting, diarrhea, and other side effects.

Doses less than 350 mg per day are safe for most adults. When taken in very large amounts, magnesium might be unsafe. Large doses might cause too much magnesium to build up in the body causing serious side effects including an irregular heartbeat, low blood pressure, confusion, slowed breathing, coma, and death.

Magnesium is safe for pregnant or breast-feeding women when taken by mouth in the amounts recommended. These amounts depend on the age of the woman. Check with your healthcare professional to find out what amounts are right for you.

Do not take magnesium if:

You have a heart problem called "heart block."
You have kidney problems such as kidney failure.


Potassium:

Note: I was told by a dietician that people with Fibromyalgia and/or Diabetes (I have both) have frequent urination and most of us should take potassium either in foods or supplements daily. Potassium is a water soluable vitamin and it washes out of our systems in urine. Most Fibro patients have some degree of low potassium levels.

Effective for:Low blood potassium (hypokalemia).

Possibly Effective for:High blood pressure.
High calcium in the urine (hypercalciuria).
Preventing stroke.

Insufficient Evidence for:Insulin resistance, heart attack, menopausal symptoms, fatigue and mood swings in early menopause, infant colic, allergies, headaches, acne, alcoholism, Alzheimer's disease, arthritis, blurred vision, cancer, chronic fatigue syndrome and Fibromyalgia, colitis, confusion, constipation, skin problems, fluid retention, fever, gout, insomnia, irritability, Menière's disease, muscle weakness, muscular dystrophy, stress, myasthenia gravis, and many other uses.

Interactions:
Moderate Interaction Be cautious with this combinationMedications for high blood pressure (ACE inhibitors) interacts with POTASSIUM

Some medications for high blood pressure can increase potassium levels in the blood. Taking potassium along with some medications for high blood pressure might cause too much potassium in the blood.
Some medications for high blood pressure include captopril (Capoten), enalapril (Vasotec), lisinopril (Prinivil, Zestril), ramipril (Altace), and others.

Medications for high blood pressure (Angiotensin receptor blockers (ARBs)) interacts with POTASSIUM

Some medications for high blood pressure can increase potassium levels in the blood. Taking potassium along with some medications for high blood pressure might cause too much potassium to be in the blood.
Some medications for high blood pressure include losartan (Cozaar), valsartan (Diovan), irbesartan (Avapro), candesartan (Atacand), telmisartan (Micardis), eprosartan (Teveten), and others.

Water pills (Potassium-sparing diuretics) interacts with POTASSIUM

Some "water pills" can increase potassium levels in the body. Taking some "water pills" along with potassium might cause too much potassium to be in the body.
Some "water pills" that increase potassium in the body include amiloride (Midamor), spironolactone (Aldactone), and triamterene (Dyrenium).

Manganese:

Manganese is a mineral. It is found in several foods including nuts, legumes, seeds, tea, whole grains, and leafy green vegetables. People also use manganese as medicine.

How does it work?
Manganese is an essential nutrient involved in many chemical processes in the body, including metabolism of cholesterol, carbohydrates, and protein. It might also be involved in bone formation.

Treating or preventing low manganese levels in the body (manganese deficiency).

Possibly Effective for:Use with calcium, zinc, and copper for osteoporosis (thinning of the bones).

Insufficient Evidence for:Anemia, premenstrual syndrome (PMS), arthritis (osteoarthritis), and other conditions.

Possible Side Effects:
Manganese is safe for most adults in amounts up to 11 mg per day. More than 11 mg per day might not be safe. Excess manganese can cause serious side effects, including symptoms resembling Parkinson's disease such as tremors. People who have trouble getting rid of manganese from the body, such as people with liver disease, may get side effects when taking less than 11 mg per day.

Check supplement labels carefully for "hidden" manganese. Some supplements (e.g., Cosamin and Cosamin DS) provide more than 11 mg per day when used according to the directions on the label.

The amount of manganese which is safe for children depends on their age. Discuss the appropriate amount with your healthcare professional before giving manganese to children.

Do not take manganese if:

You have liver problems, without the help of a healthcare professional.
Manganese can build up in people with liver problems and cause tremors, mental problems such as psychosis, and other side effects.

Possible Interactions:
Antibiotics (Quinolone antibiotics) interacts with MANGANESE

Manganese might decrease how much antibiotic the body absorbs. Taking manganese along with some antibiotics might decrease the effectiveness of some antibiotics. To avoid this interaction take manganese supplements at least one hour after antibiotics.
Some of these antibiotics that might interact with manganese include ciprofloxacin (Cipro), enoxacin (Penetrex), norfloxacin (Chibroxin, Noroxin), sparfloxacin (Zagam), trovafloxacin (Trovan), and grepafloxacin (Raxar).

Antibiotics (Tetracycline antibiotics) interacts with MANGANESE

Manganese can attach to tetracyclines in the stomach. This decreases the amount of tetracyclines that can be absorbed. Taking manganese with tetracyclines might decrease the effectiveness of tetracyclines. To avoid this interaction take manganese two hours before or four hours after taking tetracyclines.
Some tetracyclines include demeclocycline (Declomycin), minocycline (Minocin), and tetracycline (Achromycin).

Olive Leaf:
Likely Effective for:Use as a mild laxative for constipation.

Possibly Effective for:Lowering cholesterol in people with high cholesterol levels.
Lowering blood pressure in people with high blood pressure.
Reducing the risk of heart diseases and heart attack.
Decreasing the chance of getting serious conditions like breast cancer and colorectal cancer. However, there is no evidence olive oil can help treat these conditions.

Possibly Ineffective for:Softening earwax.
Treating pain associated with ear infections.

Some Evidence for:Diabetes, gallstones, liver disorders, migraine headache, gas, minor burns, skin conditions, hayfever, lice, infections such as the flu, the common cold, meningitis, Epstein-Barr Virus (EBV), herpes, shingles, HIV/AIDS, chronic fatigue and fibromyalgia, hepatitis B, pneumonia, tuberculosis, gonorrhea, malaria, urinary tract and surgical infections, osteoarthritis , rheumatoid arthritis, and other conditions.

Possible interactions with Olive Leaf or Olive Oil:
Medications for diabetes (Antidiabetes drugs) interacts with OLIVE

Olive and olive oil might decrease blood sugar. Diabetes medications are also used to lower blood sugar. Taking olive oil along with diabetes medications might cause your blood sugar to go too low. Monitor your blood sugar closely. The dose of your diabetes medication might need to be changed.Some medications used for diabetes include glimepiride (Amaryl), glyburide (DiaBeta, Glynase PresTab, Micronase), insulin, pioglitazone (Actos), rosiglitazone (Avandia), chlorpropamide (Diabinese), glipizide (Glucotrol), tolbutamide (Orinase), and others.

Medications for high blood pressure (Antihypertensive drugs) interacts with OLIVE

Olive seems to decrease blood pressure. Taking olive along with medications for high blood pressure might cause your blood pressure to go too low.Some medications for high blood pressure include captopril (Capoten), enalapril (Vasotec), losartan (Cozaar), valsartan (Diovan), diltiazem (Cardizem), Amlodipine (Norvasc), hydrochlorothiazide (HydroDIURIL), furosemide (Lasix), and many others.

There is a more complete article on Olive Leaf in another two articles on this blog page. I've got diabetes and Fibro among other things and I've taken Olive Leaf for over 11 years with no bad side effects. It's a natural anti-biotic, anti-fungal, and anti-bacterial. Of course everyone is different and anyone can have a reaction to almost anything, so just be aware.

These products have helped me a great deal and I began taking them a few weeks ago on a daily basis and have been sleeping better and have been taking much less pain medication and having way less pain and hardly any restless leg syndrome symptoms compared to before the daily use.

Check it out and see if it helps you as well.

God Bless.